help please,my mom is ill from MS disease, how will our future be?
if you can calm me down, and say something about this illness, so please read it.
My mother became ill from Multiple Sclerosis disease about 2 years and 3 months ago(mostly because of her brother who had to leave her for studying, she loves her). but after some days, suddenly became healthy, (it was a miracle, so that I cannot explain)
She used to use Avonex ampoule once a week, but after about 6 months, her doctor saw her new MRI and said that there was NO [MS] PLAQUE ON HER BRAIN ANYMORE! (this was again, another miracle, I cannot mention it)and she hasn’t used this ampoule since then.
I know stress and every little upsetting thing, can overturn my mom’s brain.
She also goes mad easily, and starts pushing herself under pressure. (I think every MOM does it!, but it is a bad poison for MY mom)
last year, an unpleasant event took place, and my mom became weaker, OK. but it wasn’t the end of everything.
she’s so essential, she has lost her beloved parents when she was young, and other events…
that time when she was caught by MS, her left eye was the one which throbbed and was near to be blind (thank God, it didn’t happen)
and now, it’s about a few months , she says all her body hurts, I mean her hands/arms/legs/head and …ache.
abt 1 month ago my uncle again left us to go to another country, and she now, she feels her left eye aches.I mean I FEEL.
she tries to do her best to be in a good mood to live her life,and be mother for her 3 children. but we all know she has a big problem, always.
now, her body aches, she has headaches, her hands, her legs…
for 2 years and more, she can’t ever walk a long way again. at the most, 1 kilometer
she can’t stand warmth, can’t stand coldness.
she can’t hold a heavy thing, even a tray of 5 glasses!
(
I’ve been always in an alertness for the next attack.
but I know if it happens, everytime, I can’t handle it. who can?!
how will be our future??
my brother is still a kid, 9 years old, and my sister is young[17], she needs support.
my mother is always in danger of losing her ability…how will be her future?
I love her, she’s an angel, I can’t imagine a day when she isn’t with me, but alas!
I know, I won’t endure her dark future, and ours, I will kill myself one day if she…
we’re always arguing with each other ( me, my dad, my sis, bro and mom)
but we can’t cotrol it either.
but we’re alert too.
we can’t ever scream really, we can’t have a surprising thing or …
but sometimes we do, and my mother is just as shocked as a chick.
we don’t know what will happen if one day she loses a beloved one.
it was happenning last year [but didn't]and I saw what was happenning, I was witness of her mood and her…
God help us, we need you, MS can’t be cured and cleaned forever, at least till now.
but God, you help us.
do you know how will our future be? do you know what should we do?
sorry if I wrote this lowwwwwwwwng essay, but I’m very upset about it and don’t know what to do…
it was reached to my throat, so that I could handle it only with talking about it.
pardon me, but I’m very sad about it, I can’t live without my angel-mom…
……………..Gosh! she’s at risk FOREVERMORE…………………
hey, my mom DOES have her own specialist.
she is checked regulary
Why did your mother stop taking Avonex? It is quite common with relapsing-remitting MS that the plaques in the brain disappear as the body heals itself, but this does not mean that the MS is dormant or that there won’t be any new attacks.
If your mother has relapsing-remitting MS, my advise would be that she starts with the medicine again, whether it’s Avonex, Copaxone, Rebif, Betaseron, LDN or, if necessary, Tysabri.
Stress can worsen MS, so try to ensure that your mother has as little stress in her life as possible.
Try talking to some alternative medicine specialists. Also some Vitamins are extremely help full in pain relives and improving her abilities.
You also might want to have a counseling on this by some professionals like Therapists.
Best of luck!
Try to make sure your mom has as less stress as possible.
http://www.webmd.com/multiple-sclerosis/guide/default.htm
i dont know
but with luck your mum will live a normal and happy life try to stay close to her and help around as much as you can and try not dont argue with your family try to give her moral support
i suppose you just have to be carefull and make sure your mum keeps up with her medication
i suppose you know what to do if she has an episode
people dont know how serious MS is
but scientists are studying it now and maybe if your lucky they might be able to cure it
most people with MS can live as long as uneffected people and some even live near normal lives
so good luck and stay strong