Coping with MS and the extreme exhaustion?
Hello, I am trying to get some support on dealing with MS. The last couple days I have been sooo exhausted that I cannot function. Today I had a hard time getting up to take my daughter to school and when I came home, I ate a small bowl of cereal and laid down with my 3 year old and slept for almost three hours. When I woke up, I was numb all over and took a little bit to get feeling back so that I could get up. I cant do this anymore. I am on Avonex intermuscular injections and I take my next shot today but even that is not helping any. I have been on it for 6 weeks already. I cannot concentrate and I forget my words. I have trouble remembering what I was trying to say and when I do know what I am wanting to say I cannot express myself. The other day at church one of the little girls was not being safe and I was trying to tell her parents that were not paying any attention and all I could say was "she is going to to to to" I couldn’t even get it out that she was about to get smashed in the heavy door. I need some home remedies or something to help with the fatigue. I need to be able to function normally all the time. I have already been on 3 packs of midrol/methylprednisone and I am not getting any long term relief. Any advice, suggestions, experience?
I know exactly what you are going through. I also suffer from SPMS, and at times I sleep for days, during which I do not take my meds.
I know that there are meds out there to relieve the severe fatigue we experience. I hope you have a supportive partner, my hubby is great and DOES understand the fatigue part of MS.
There is:
ritalin
(sorry that;s the only I can remember at this time) You can go on the MS site (sponsered by the Multiple Sclerosis Society) and you will get the names of the other 3 out there. Then go to your doc and ask for one.
Hope you feel better.
All the best.