Comments on: please, someone with knowledge on Multiple Sclerosis, answer my question? http://www.managing-multiple-sclerosis.com/ms-symptoms/please-someone-with-knowledge-on-multiple-sclerosis-answer-my-question-2 General MS Info and Managing Life With It Mon, 13 Sep 2010 15:31:13 +0000 hourly 1 http://wordpress.org/?v=3.0.1 By: Sasha http://www.managing-multiple-sclerosis.com/ms-symptoms/please-someone-with-knowledge-on-multiple-sclerosis-answer-my-question-2/comment-page-1#comment-2440 Sasha Thu, 12 Nov 2009 10:44:52 +0000 http://www.managing-multiple-sclerosis.com/ms-symptoms/please-someone-with-knowledge-on-multiple-sclerosis-answer-my-question-2#comment-2440 Multiple sclerosis (MS) affects the nerves in your brain and spinal cord, causing problems with muscle control, vision and balance. It may also affect your memory, as well as your moods and emotions. Around 85,000 people in the UK are affected by MS. You are most likely to develop it between the ages of 20 and 40. It affects about twice as many women as men. For some people with MS, the symptoms can occur constantly for a time and then go away. Some others symptoms come and go more quickly. You haven't been diagnosed with MS. To get the diagnosis takes alot of investigations and time. There are alot of reasons why your lips and tongue might go numb every now and and then. Why do you think it must be MS? Incidentally, not everyone receives the injections for MS. It depends on the type of symptoms you are experiencing. If your symptoms are severe, your doc may prescribe you a short course of steroids, often methylprednisolone (eg Depo-Medrone). These reduce inflammation and help to shorten your relapses. Disease-modifying drugs may slow down the progression of the disease and help to reduce the frequency or severity of attacks. But you do not start off taking them. Multiple sclerosis (MS) affects the nerves in your brain and spinal cord, causing problems with muscle control, vision and balance. It may also affect your memory, as well as your moods and emotions. Around 85,000 people in the UK are affected by MS. You are most likely to develop it between the ages of 20 and 40. It affects about twice as many women as men.

For some people with MS, the symptoms can occur constantly for a time and then go away. Some others symptoms come and go more quickly.

You haven’t been diagnosed with MS. To get the diagnosis takes alot of investigations and time. There are alot of reasons why your lips and tongue might go numb every now and and then. Why do you think it must be MS?

Incidentally, not everyone receives the injections for MS. It depends on the type of symptoms you are experiencing.

If your symptoms are severe, your doc may prescribe you a short course of steroids, often methylprednisolone (eg Depo-Medrone). These reduce inflammation and help to shorten your relapses.

Disease-modifying drugs may slow down the progression of the disease and help to reduce the frequency or severity of attacks. But you do not start off taking them.

]]> By: Tony T http://www.managing-multiple-sclerosis.com/ms-symptoms/please-someone-with-knowledge-on-multiple-sclerosis-answer-my-question-2/comment-page-1#comment-2441 Tony T Thu, 12 Nov 2009 10:44:52 +0000 http://www.managing-multiple-sclerosis.com/ms-symptoms/please-someone-with-knowledge-on-multiple-sclerosis-answer-my-question-2#comment-2441 Hey have you been told that you have MS. I was told about 3 months ago and im still picking myself up off the floor, i start daily injections tomorrow for MS and all i can tell you is that i continue to have numbness that comes and goes all the time. Hey have you been told that you have MS.
I was told about 3 months ago and im still picking myself up off the floor, i start daily injections tomorrow for MS and all i can tell you is that i continue to have numbness that comes and goes all the time.

]]> By: Ljoy http://www.managing-multiple-sclerosis.com/ms-symptoms/please-someone-with-knowledge-on-multiple-sclerosis-answer-my-question-2/comment-page-1#comment-2442 Ljoy Thu, 12 Nov 2009 10:44:52 +0000 http://www.managing-multiple-sclerosis.com/ms-symptoms/please-someone-with-knowledge-on-multiple-sclerosis-answer-my-question-2#comment-2442 I've had MS for 14 years. Symptoms are different for each person. For me, the numbness was constant until I would take steroids for several weeks. Don't be afraid to go to the doctor because if you have MS it's better to start treatment as soon as you can to avoid permanent disability. The injections are not bad. No pain. It's rare for people diagnosed these days to end up in a wheelchair if they follow doctors orders. Good Luck I’ve had MS for 14 years. Symptoms are different for each person. For me, the numbness was constant until I would take steroids for several weeks. Don’t be afraid to go to the doctor because if you have MS it’s better to start treatment as soon as you can to avoid permanent disability. The injections are not bad. No pain. It’s rare for people diagnosed these days to end up in a wheelchair if they follow doctors orders. Good Luck

]]> By: "weee..." http://www.managing-multiple-sclerosis.com/ms-symptoms/please-someone-with-knowledge-on-multiple-sclerosis-answer-my-question-2/comment-page-1#comment-2443 "weee..." Thu, 12 Nov 2009 10:44:52 +0000 http://www.managing-multiple-sclerosis.com/ms-symptoms/please-someone-with-knowledge-on-multiple-sclerosis-answer-my-question-2#comment-2443 Ok hon, listen. I have been diagnosed with M.S. since I was 13, and I am 20. I hate all injections, to the fullest. My extent is so bad, that to this day I faint when I see blood. But denial, and not wanting to accept it is normal...but it is not goinng to fix your problem. You are allowing your M.S. to get worse and take over you. And THAT is not fair to you. I know a diagnosis of M.S. is horribleeeee. I been there. But so have many others. And it is not the worst thing out there. For one, it is extremely rare to die from it. So here's a list of good things about having M.S. : 1) Most people with M.S. dont not have cancer. (Immune system is too strong) 2) Women dont get it as severe. 3) Women with M.S. very rarely if ever do they get Breast Cancer. 4) It is treatable, especially if you begin medication while you are still young. If you got it, you got it. I am so sorry for you. But you can treat it, and live a normal life. For one, you CAN have kids. Also, the injections are not so bad...the needles are small, Unless you take Avonnex, those needles are longer because the injections are intremuscular, however with Avonnex you only do the injections once a week. Depression is very normal for people with M.S. I mean, of course it is, what is scarier then being diagnosed with an autoimmune disease? However, not treating it is much scarier. I think that what scares people most about M.S. is not knowing. But what is much more scarier is not treating it because if you dont treat is, the possibility of not knowing is much higher, your chances of being disabled are much higher. If your tongue is numb, that is weird. Obviously not normal. It could be M.S., or it may be something else. For one, the tongue is a muscle....so it could even be muscular dystrophy for all you know...or even Lupus! And if it is M.S., then I'd be freaking out because the tongue is not too far from the throat which can go along with swallowing.... Look, not all medications for M.S. are daily. Some are weekly, some are every 3 days some are daily, one-- Tysabri is monthly at a hospital. Best of Luck. Also, I answered another question of yours which answers the symptoms question. Honestly as far as symptoms, it is a thing that once a symptom starts it wont stop until the full relapse is complete. It depends on your personal situation. It can range from 3 days to months to years of relapse after relapse. For Optic Neuritis, I am like completely blind in one eye by like 4 days to a week. And the symptoms dont come and go, they are non stop. Ok hon, listen. I have been diagnosed with M.S. since I was 13, and I am 20. I hate all injections, to the fullest. My extent is so bad, that to this day I faint when I see blood. But denial, and not wanting to accept it is normal…but it is not goinng to fix your problem. You are allowing your M.S. to get worse and take over you. And THAT is not fair to you.

I know a diagnosis of M.S. is horribleeeee. I been there. But so have many others. And it is not the worst thing out there. For one, it is extremely rare to die from it. So here’s a list of good things about having M.S. :

1) Most people with M.S. dont not have cancer. (Immune system is too strong)
2) Women dont get it as severe.
3) Women with M.S. very rarely if ever do they get Breast Cancer.
4) It is treatable, especially if you begin medication while you are still young.

If you got it, you got it. I am so sorry for you. But you can treat it, and live a normal life. For one, you CAN have kids. Also, the injections are not so bad…the needles are small, Unless you take Avonnex, those needles are longer because the injections are intremuscular, however with Avonnex you only do the injections once a week.

Depression is very normal for people with M.S. I mean, of course it is, what is scarier then being diagnosed with an autoimmune disease?

However, not treating it is much scarier. I think that what scares people most about M.S. is not knowing. But what is much more scarier is not treating it because if you dont treat is, the possibility of not knowing is much higher, your chances of being disabled are much higher.

If your tongue is numb, that is weird. Obviously not normal. It could be M.S., or it may be something else. For one, the tongue is a muscle….so it could even be muscular dystrophy for all you know…or even Lupus! And if it is M.S., then I’d be freaking out because the tongue is not too far from the throat which can go along with swallowing…. Look, not all medications for M.S. are daily. Some are weekly, some are every 3 days some are daily, one– Tysabri is monthly at a hospital.

Best of Luck. Also, I answered another question of yours which answers the symptoms question.

Honestly as far as symptoms, it is a thing that once a symptom starts it wont stop until the full relapse is complete. It depends on your personal situation. It can range from 3 days to months to years of relapse after relapse. For Optic Neuritis, I am like completely blind in one eye by like 4 days to a week. And the symptoms dont come and go, they are non stop.

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