Managing Multiple Sclerosis » Multiple Sclerosis Treatments

Am I a bad guy for feeling like this dealing with a sick wife?

Vince — Mon, 19 Jul 2010 16:39:39 +0000

Question by Ronnie N: Am I a bad guy for feeling like this dealing with a sick wife?
My wife and I have been married for 17 years. Met in high school married at 22 years old.
About 7 months after we were married my wife was diagnosed with M.S. ( multiple Sclerosis )
Trust me when I say they have no ” good ” treatments for M.S.
It is not ” fixable”. I am a healthy man and have always been. I love to go outdoors, fishing, hiking, swimming exc…..
My wife is unable to do any of these things with me because one of the issues with M.S. is fatigue. She can not or wont do anything with me, the things that I love to do because of the fatigue. Another thing that goes along with M.S. is immune system can’t fight off viruses like a norman immnue system. So, she is always comming down with something that makes her feel worse.
So, here I am healthy, somewhat charming man that feels like I have been given this life to bear. I love her very much, that is why I am still with her. I believe marriage is forever but, at the same time I cannot enjoy life with the one I love. ( or at least not all of life )
She was cute as a button when we got married. Due to some of the ” treatments ” it has caused her to gain a LOT of weight. She weighs almost twice what she did when I married her.
How do I keep dealing with this?????
Am I a DOG for wanting to spend life with someone who is a healthy person? Who do I deal with this?
It just SUCKS !!!!!!!!
Yes I know my wife if she did not have this disease would be able to do some of the things that I feel like I am getting short-changed with.
She always says that I am going to leave her but, I have NEVER given her a reason for thinking this.
Are there some support groups for people like me?
Another thing she has not been able to have an orgasum in the last 13 years because she has no feeling ” down there “.
I also miss the sex, man do I miss the sex. Am I wrong for wanting to see and hear a woman have a mind blowing climax?
It just sucks !!!!!!!!!!!!
I can’t believe some of the people here.
If you dont have to deal with personaly the what the F$(K do you know.
You dont have a clue BASTARDS
I look for sympothy and I get shit?
F*&K you !!!

Best answer:

Answer by Aunt Dee
There are support groups. Just do a search. Lets face it, they could only help. How many other guys are going through the same thing?

What do you think? Answer below!

can i take oxycodone while taking tizanidine and rebif?

Vince — Mon, 21 Jun 2010 22:18:59 +0000

I have Multiple Sclerosis so im prescribed alot of medicine. Is it safe to take all of this medication. I also take Ambien as a sleep aid.

Questions about the Israeli boycott.?

Vince — Tue, 08 Jun 2010 22:18:48 +0000

I disagree with what Israel is doing so I am thinking of joining the boycott but, I have some questions about it.

Does the boycott include some of the life saving medications made in Israel such as Copaxone and Rebif?
Do I have to stop using my computer because the Pentium NMX Chip (the bases of all modern chips) and most of Microsoft Windows were developed in Israel?
Do I have to boycott all of the companies that have branches in Israel (TI, IBM, Sandisc, Apple, ect.)?

If I have to risk my health, standard of living, and other things like that then I am will be unable to participate in the boycott. What is the solution for these problems?

I thought Diclofenac and Ibuprofen were the same?

Vince — Fri, 28 May 2010 22:16:47 +0000

Here’s a little background-

I have MS and was taking Ibuprofen (800 mg) when I took my Rebif shot every 2 days to prevent flu-like symptoms. I also took Ibuprofen b/c I get major migraines from the MS. The 800 mg of Ibuprofen really helped my migraines…they usually went away within 20 minutes.

Well then a few months ago, I started getting really bad cramps (from female issues). The Gyno prescribed me some Naproxen. Well, at the time I didn’t know I couldn’t take Ibuprofen AND Naproxen (since they are in the same family of NSAID’s), but on some days I was taking both.

Well, about 2 months ago, I started having really bad knee pain and went to my regular doctor. He told me that I have really bad arthritis in my knee cap. At the time, I had been on steroids prescribed by my neuro for my problems with my MS. So, at the time I was taking steroids, Ibuprofen AND Naproxen.

My regular doctor told me that Naproxen/Ibuprofen should be helping my knee pain b/c it is designed to help arthritis.Since it wasn’t helping, he gave me Vicodin (without me asking for it). It helped, but when I ran out, he refused to refill it and gave me Diclofenac Sodium.

Well now, this diclofenac sodium is not only NOT helping my knee pain, it is also causing me to get headaches. If diclofenac and ibuprofen/naproxen are in the same family, then why would Ibuprofen help my headaches and diclofenac cause a headache? I don’t know what to do now b/c Ibuprofen was the only thing that helped my headaches, but I can’t take Ibuprofen if I am on diclofenac.

what is the difference between Ampyra v. aminopyridine?

Vince — Mon, 19 Apr 2010 09:36:34 +0000

Multiple Sclerosis: Is Rebif at all a form of chemotherapy?

Vince — Wed, 17 Mar 2010 10:26:54 +0000

So I have MS and I have taken Rebif for the past 4 years. I’m in the process of an insurance claim, and I’m trying to research if Rebif is, in fact, a form of chemotherapy. I’ve scoured articles the past few hours and still don’t have an answer.

I searched through Yahoo Answers and a user (pcheezwhiz, or something like that) stated that the Interferon class of drugs used to treat MS are all forms of chemotherapy. And I found a chemotherapy website that talks about interferon-alfa in MS.

Can anyone help me out?

Any help for multiple sclerosis stiffness?

Vince — Sat, 13 Mar 2010 07:52:40 +0000

I am a month into a severe multiple sclerosis relapse that has left my right side numb and very stiff. Had IV steriods with a Prednisone taper. This helped the numbness subside about 30%, but now its back full force, with the stiffness in my leg and right hand. I take Rebif and Neurontin in the evening to supposedly help the stiffness. Does anyone take anything else for the stiffness? Or do you have any advice for this hell I am stuck in?

Questions about M.S. medications?

Vince — Tue, 09 Mar 2010 03:05:17 +0000

I was diagnosed almost two years ago, and the first year after my diagnosis I was taking Rebif. The injection site reactions were minimial but the other side effects (fatigue, depression, nausea) we driving me crazy. Soo exactly a year after my diagnosis, I asked my neurologist to prescribe Copaxone, because I heard it had less side effects than Rebif. I’ve been taking Copaxone for about 10 months now and, even though feel a lot more energic and less depressed, the site reactions are bothering me. I itch all day, Im embarrassed to wear shorts because my legs are permanently bruised, and I had to stop working about my abs so I could still injected my ab area. (It hurt wayy too much when I started to build a bit a muscle)

Is there anyone else that has MS, is taking Copaxone and has experiences the same discomfortable in the injection site? If so have you learned any other methods of injecting that have helped?

(I know this is kind of long but, out of curiousity) My MRIs have shown absolutely no change, no progression what so ever. Has anyone actually been taken off of their meds because of this? I know its only been a year and some change but I would be the happiest person EVER if i was told there was no longer a need for me to take Copaxone.

Vince — Sun, 31 Jan 2010 22:20:15 +0000

Is this Multiple Sclerosis or Migraines?

Vince — Mon, 18 Jan 2010 10:20:24 +0000

I was diagnosed with MS in Sept. ’06 based on an MRI showing about 12 small lesions and 1 large lesion on the back of my brain. I’ve had EVERY test possible, i.e. lumbar puncture (showed very high protein levels, but no O bands), heavy metals, lupus panel, Lyme, B12… the list goes on and on. Fortunately, I’ve had very thorough doctors so far. I had my second MRI a year later and it showed absolutely no change. Spine MRI was clear. Here’s my symptoms: 5 episodes of relapse since 2005 each lasting a couple of weeks, which include numbness/tingling in hands/legs/feet, brain "fog", severe fatigue, spasticity esp. in my right leg. Some of the symptoms persist even during periods of remittance such as stumbling over words, forgetfulness, heat intolerance where my symptoms worsen. I used to be really good at spelling and now I have difficulty with words I’ve always known. I’m currently taking Rebif.

My new neuro 3 months ago (an MS specialist), she saw my MRI and said there was only 1 lesion that was in the "normal" area where you find MS lesions and that it looked more like a long history of migraines. The thing is, I’ve never had a migraine until about a month ago. I’ve since had 2. My neuro is now rethinking the diagnosis of MS and calling it migraines, but is for now using the wait-and-see approach.

Does anyone have MS, but doesn’t have changes from one MRI to the next? Are high protein levels in the spinal fluid a precursor to O bands like my first neuro who diagnosed me told me or is it true that this doesn’t mean anything? Any other advice would be MUCH appreciated. If I don’t have to keep doing these shots I don’t want to, but if it is MS I don’t want to quit and just end up having a worse relapse. Thank you!!!