Has anyone had success with Immunical or B12 injections for Multiple Sclerosis?
If not, what have you had success with when it comes to treating symptoms related to walking, etc?
If not, what have you had success with when it comes to treating symptoms related to walking, etc?
have suffered horriffic nightmares(like 10 times worse than anything hollywood could ever come up with), hallucinations, excessive loss of sleep etc?
My mom was diagnosed with MS about two months ago. She was perscribed Copaxone and started taking it a week and a half ago. Since then she has suffered SEVERE dry mouth. It gets so bad she can’t eat, sleep or sometimes breathe properly. I need to talk to someone who has experienced this symptom. I need to find out first of all, what they did to ease the symptom, and also if this is something that goes away with time, or is it a permanent side effect of the drug. Please only personal experience answers…her doctors don’t know much and are little help…
P.S. Copaxone DOES cause dry mouth. It’s listed in the drug explanation as a side effect. It’s at the bottom of the list, but it is there. My mom and I have both read it
I am also perfectly aware that when clinical studies are conducted, if just one person of 500 suffers a specific symptom, that this symptom must be listed in side effects. Obviously my mother is one of the rare cases. I’m not looking for people to tell me it’s abnormal or incorrect, I’m looking for someone who has experienced this as well. Trust me, we are a very throrough and well educated family. We don’t need to be told the obvious. I need first hand experience please.
Also, thank you Maggie F and ktajfl for the links!
I only see my doctor twice per year (or should I say that’s all they want to see me). I’m due my 6 month check up and was surprised to hear that the doc does not want to do an mri even though I’ve had a relapse of symptoms. What do I do? The medicine I take is expensive and I would think someone would want to know if it’s even working. (especially me)!!!
I have pp MS and doctors have done little for me but treat some symptoms. I have known about it 9 years and am doing better than expected and going down very slowly, but still going down. Is there any way to turn this around?
Im also taking copaxone and loestrin 24 Fe. Also under some stress with school work. Should I worry or is this normal when just starting the pill?
Okay so I have MS and I have a dellema. I am stuck on the fence. When my baby is born I wanted to do breast milk for the first couple of months so she gets what she needs from my milk, but this means I can not get back on any of my MS meds while im doing that. I have chronic fatigue and Insomnia from my MS so this preg has been hell on me and me and my husband are worried that it will be worse when i have the baby and my 18 month old girl with the fatigue and insomnia. Now the meds im on for my MS and all the side effects get rid of those two things. So i guess my question is what do you all think i should do, wait to get back on my meds for a couple months or sacrafce breast feeding for a couple months so that I can get back on meds to help the damage thats been done and to prolong any other damage that can be done after i have baby. (a lot of preg. woman with MS will go through a relapse or a new attack between 6-8 months after they give birth. had it happen with first one. went blind in one eye.) Any advice or suggestions would be great! just sittin on the fence and not sure which way to go over it.
The point in doing this is my husband and I are worried that if i don't get back on my meds right away that i wont be able to be there like i need to be for both my children, I kinda just turn into a zombi recluse when im not on meds because im so tierd and sore all the time. just don't want to do that to my kids and my husband.
Okay so i guess from the answers i should also add this…….I am already set on my meds I was taking them before this second baby. my main MS med is copaxone it is one of the safest drugs on the market right now for MS so all of you know i have a med im on and it is not known if its okay with breastfeeding so the say don't breastfeed on it. so its an either or situ either i post pone my meds and chance a relapse or new attack to breast feed baby or put baby on formula and get back on my meds and completely avoid any new stuff with MS
I have had MS for about 2 years. Have been on Avonex, but having too many flare ups lately. Every month is seems. They are planning on changing my meds, what seems to work for everyone. Has anyone been on Avonex and changed. Did your new meds work better?
My father has MS and just recently quit work due to the stress from it. My question is Can he get help from any organization who can help him get the right medicine or any kind of help? Without having insurance. He also is going to have to take a different kind of medicine since the one he has taken for 9 years is not working any more. The new medication is Tysabri which is really expensive. Any help I would really appreciate.
For the past couple of years I have been required to take polygraph tests. Recently I was dianosed with Multiple Sclerosis which severely damages my Central Nervous System. I have lots of muscle spasms & other symptoms that would make it virtually impossible to get proper results on the test. Do you think my doctor & a lawyer could work this out for me. Also, the cost of having to take a polygraph test is very expensive, & I absolutely do not want to pay for something that I know would not come out correctly. Please help me w/ any & all advice or personal experiences. Thank you all & God bless you. Sincerely John……